PICTURES OF CADEN (Newest at bottom.)

Tuesday, September 26, 2006

Teeth, Growth Hormone, Pumpkin Patch, & a Frog

Caden visited the dentist. Mommy's friend Rachel said that one of his teeth kind of looked like a shell, so she thought that he might already have a cavity or just a weak tooth. We took him in, and the dentist said that his teeth look great. She actually said that his teeth were hard and strong. This was a shock and happy news for us. She said that his tooth was formed and aligned for the tooth on the bottom.

The dentist has worked with children with Prader-Willi before, so that is one of the reasons why we chose her. That and mommy's friend Rachel works there. The dentist also went to school with Caden's pediatrician, Dr. Krenzer. Isn't it truly a small world?

Caden has started his Growth Hormone (GH) shots (Click here to read more on Growth Hormones). He got his first shot this last Sunday (September 24th, 2006).

We went to the place that will be supplying the GH for us, OptionCare. We got there about 1:00 PM and our appointment was at 1:15 PM. The lady assigned to teach us was just getting there. She lead us in and asked us how much we had been briefed as to what he was recieving. I had done my own research and Holly had heard tidbits from the doctors as well as myself. Caden is being given GH called Humatrope which is made by Lilly, a pharmaceuticals company. (As with any drug, the name varies based on the company that makes it.)

HumatropenWe have what is called a Humatrope Pen (at right) that the GH is stored in. It contains the doses that he will recieve for 4 weeks (exactly 28 days). We will use this every day to give Caden his shot.

Believe it or not, mommy actually volunteered to give Caden his first shot. I am so proud of both of them. She went through with it immediately. No hesitation. She was crying before she gave him the shot, as well as during and after. He only cried for maybe 2 seconds. He looked at mommy like, "Why are you crying mom?" He did so awesome.

Last night when we gave him the shot, it was daddy's turn. I wasn't worried about it at all. I knew I could do it and that Caden could do it. I got the stuff ready, and gave him the shot. He didn't cry, he didn't flinch. He just sat there and waited for it to be over with.

My little boy is such a trooper.

We took him to Vala's Pumpkin Patch on Saturday. He absolutely loved it. They have goats there and all he wanted to do was touch them. We went on the hayrack ride to get a pumpkin. As soon as it started moving, Caden was all smiles. He was looking around and laughing.

We took him on the train as well. You can only sit two to a seat, so mommy decided that it was daddy's turn since mommy and aunt Tiffany sat next to him on the hayrack ride. (Hey, somebody has to take pictures!) I sat him on the seat and put his blanket over his lap. Then I sat next to him.

When we started to move, I had him hold my left hand. I didn't fully expect him to hold on for too long, but he didn't let go during the whole ride. He actually signaled for me to move closer. After I did, I put my arm around him. He then grabbed my right hand and held on to it as well. He didn't let go of either hand until we were done with the ride. He sat there the whole time holding my hands, watching all of the little towns and scenes that they had set up. Sometimes smiling, but always watching and holding on to me.

We took him into one of their "haunted houses," which is nothing more than a bunch of glow in the dark paint and "scary scenes." When we exited, he had this mad look on his face and he just let out a big, mad sigh. "Hugh!!!" It was kind of funny. There were a couple of people outside that saw this and got a chuckle out of it.

I bet you were wondering about "...a Frog." Well, that is Caden. Rather, that is what Caden is going to be for Halloween. "Aunt Amy" was at Old Navy and saw a frog costume there and told us about it. We were going to have him be Pablo from one of his favorite shows "The Backyardigans." Holly had found the costume on Nobbies' website, but since Amy found the frog we thought that we might as well check it out. Well, we liked it and decided to get it.

NOTE: For the pumpkin patch and Caden's costume, pictures are soon to come.




Until Next time, I continue to ask for and thank you for your prayers.

Tuesday, September 19, 2006

20 burgers, 40 bags of chips and I was still hungry

20 burgers, 40 bags of chips and I was still hungry

I know this article has nothing to do with Caden right now, but it does help us to know that there is some kind of hope. The guy in the article has Prader-Willi Syndrome and he lives with his new wife who has cerebral palsy.



Until Next time, I continue to ask for and thank you for your prayers.