Bottle Battle

Now, everybody knows that it has been and will continue to be a battle for Caden to drink all of his bottle. That is the reason for the feeding tube.

Caden is up to 160 mL per bottle 5 times a day. Roughly 30 mL is 1 ounce. So, he is up to 5 1/3 ounces.

Yesterday, Caden took 100 mL of his bottle, then the next feeding he took 105 mL. I was so happy to see that he took the 100 mL, that was the most that he's ever taken. Then, he took the 105 mL, and then that was the most he'd ever taken.

Holly just called me and informed me that he took all 160 mL of his bottle. So, needless to say, this makes us very happy and proud of him.

Once he can do that for all of his feedings, he can get rid of his feeding tube.

As usual, keep praying. Our prayers are being answered.

Baptism Recognition Pictures

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Thanks to Angie for the pictures

Caden's Baptism Recognition

First, I want to say thank you to those who attended and sent gifts. You all mean the world to us.

Since Caden was baptised in the hospital, today was just the church "recognition" of the baptism, welcome into the family of Christ, and presentation of his sponsors (godparents).

Everything went as expected. He was wide awake through the whole service. He got a little fussy when we were actually doing the ceremony, but he calmed down pretty easily.

Online Photo Album of Caden With Animals

Caden Rolling Over

Caden Rolling Over

For all that didn't believe me, here is my 2 month old son rolling over. For him having low muscle tone, I'd say that he's doing good.

How about you?

Caden and the pediatrician

We went to Caden's pediatrician visit.

We asked her about the gas levels, and she said she thinks his CO₂ level was at 58. That is on the high end of where he was running this last hospital visit. The level also goes up and down naturally based on the amount of physical activity you are doing. It is harder to remove CO₂ when you are doing more activity. Just the same, it is harder to keep your oxygenation levels up when you are doing physical activity. But, when they checked Caden's oxygenation level, he was at 99 out of 100. So, he is keeping it up above where they expect it to be (89 to 95).

He gained 12 ounces since last Wednesday, which is what she was hoping for. His weight is on the lower end of where it should be, so she is having us pump him full of calories to help him increase his weight and get where he should be for his age.

She has changed his feeding schedule and amounts again. We were at 105 ml every 4 hours, now she is changing it to 115 ml every 3-4 hours during the day and 120 ml for the feeding before we go to bed and the first one in the morning. She is trying to give us a 6 hour window in which we can get ("hopefully") uninterrupted sleep. We'll see what actually happens.

Caden vs. Dr. Norohna

Caden met with the pulmonologist, Dr. Norohna, on Monday. The doctor said that it sounds like Caden is breathing deeper. He also said that it looks like he is breathing deeper as well. So, all in all that is good to hear. They took his blood gas levels and another test, just to see how he is doing with his CO₂ (Carbon Dioxide) levels and other levels.

The nurse for Dr. Norohna's office called yesterday, they said that his levels were about where they expected them to be and that everything looked good. Both Holly and I wish that they had told me "what" the levels actually were. Since we learned so much in the hospital, we would have at least had a general knowledge about them.

Today, Caden's physical therapist and "teacher" were supposed to come by for the first time at 10:15AM. They are going to come once a week to my understanding. But, only the teacher showed up. The "teacher" said that it was very unusual for the physical therapist to not show up. But, the "teacher" did what she came to do anyway. She is going to help him with playing with his toys, like batting at them, and things like that.

They are also going to set up a time where we can meet all of the people that will be working with him. (i.e. the physical therapist, the "teacher," the occupational therapist, etc.)